All She Wants To Do Is Dance

So, that is Pumpkin, now 14, graduating from 8th Grade, junior high, and stepping off into the world of high school...

In March we found out Pumpkin was not having growing pains in her feet, ankles and knees, but instead it was a form of systemic arthritis. Since then it is confirmed that Pumpkin has JRA, juvenile rheumatoid arthritis.

Of course, having me as her mom, there was a higher chance of it happening than if I didn't have the lupus etc. Sigh. How do you deal with that? Well, you don't really. You feel like shit. You feel guilty. You feel angry. You feel sad.

Then, you realize none of those emotions - and certainly not the 'blame game' is going to help anyone. Especially, not Pumpkin.

So, you shove all that down and focus on her and her needs, wants and desires and making her life as uncomplicated and easy as you can while coping with a chronic disease.

We have a great pediatric doctor. Her office is also fantastic and I am very happy with their responsiveness and help so far. Believe me - that is half the battle.

We address the symptoms by helping her cope with the pain and anti-inflammation via medicines and we address the disease directly by adding a DMARD (disease modifying anti rheumatic drug), in this case methotrexate. It suppresses her immune system so it will be more difficult for it to attack itself. I, too, am on the same drug once a week.

Pumpkin just started this bigger gun last week with a small dose and this week with her regular dose of 15mgs, and she has tolerated it well and I am happy to say she is feeling better.

Usually, it takes a few weeks for it to kick in, but a lucky few get instant relief. It seems she has been that lucky. :::knocking wood:::

In fact she is walking on the treadmill right now, second day in the row!

The road ahead will not be without its obstacles. However, I will be there paving the way the best way I know how.

I may not be able to bend the universe to my will but I WILL make it quiver a bit when it comes to my babies and making life right for them.

And when she wants to dance... she will.

be well,
Dawn

Thankful Thursday

I have so much to be thankful for, so many blessings.

However, today, I am in pain, tired and weepy.

I hate that.

So, I got up, took my morning meds, got dressed, ate some food and took a vicodin (which I hate to do), drank 2 coffees, drank an orange juice, checked emails, and crackbook, er Facebook, I mean, and now, I am here.

Weepy because I am so blessed. Weepy because I really wish I could ENJOY my blessings more.

Today lupus/rheumatoid arthritis is kicking my ass.

Anyhow...

1. Coffee. Thank you, Juan Valdez. Green Mountain. Keurig.

2. My kids. My life. My heart. My reason.

3. My parents. Dad's 70th Birthday was yesterday. We had a surprise dinner for him on Saturday night, just adults, with my cousin Karol and my sister/bff Kathy. He is their surrogate dad in many ways and they wouldn't miss it for the world. It was nice. Last night was dinner out with the kids and Uncle K, who couldn't make it on Saturday due to work. :-)

4. Reading. Oh how I love to read! AND, I am so blessed that my kids ALL have the reading bug too! YAY!

5. Tonight, Fuzzy will have his Eagle Scout Board of Review... and he should be elected as one with no problem! The big public ceremony will be in May and he and Hammer will have that together!!! I am so proud!

6. Libby. She is snuggled on the floor right next to me as I type. If I get up, she follows, and then reclines near me, wherever I may go. Nothing like a dog for loyalty!

7. The cats! Oh the fun they are having with mylar balloons from dad's birthday floating about! They are so funny!

8. American Idol. I enjoy watching it each season. By extension, I am grateful for music. It is just such a wonderful gift and part of life. It can help lift you up, pump you up, express love, hate, frustration or fun!

9. Piano. I love listening to Pumpkin play piano! She is so gifted... and doesn't get it! LOL

10. My friends. Thank you, your support means the world to me. Truly.

be well...

Blaze of Glory

Fuzzy finished his Eagle Scout project this weekend. Phew!

Stay tuned tomorrow for a Wordless Wednesday picture that will highlight his efforts!

Warning: Mommy braggin' below! LOL

Fuzzy collected items over a two week period at 3 locations Mon - Fri and 2 locations on Saturdays. (two schools, and police station)

In addition to 2 huge boxes of items, also collected was over $420.

Who is to receive this windfall?

American soldiers in Iraq and Afghanistan.

Regardless of your personal feelings about the political reasons/situations that resulted in our deployment of these soldiers - they are there. At the whim of our government, putting themselves on the line every day. They deserve our support, and if we can give them a little comfort - that too.

The Letter from Home Program at lettersfromhome.org will be the liason between Fuzzy and the soldiers.

I am very proud of my boy.

This Thursday will be his board of review, and barring any unforseen difficulty, Fuzzy will become an Eagle Scout at that time, soon to join Hammer in the formal presentation at the Court of Honor in May. :-)

Fuzzy has had a very rough month too, after just getting over an ear infection in January and injuring his leg/knee with an almost break and tearing the ligments, last week he was sidelined by a bad cold that went straight to bad bronchitis and asthma flare up.

This week he is completing the final Eagle Scout Project details, making up school work, arranging to make up NJ State school testing, and serving our township in Youth Month! The students who volunteer are assigned two counterparts in the municipal government. One is a township employee, the other is a member of the Mayor and Council. Very cool opportunity. Fuzzy and Pumpkin are both participating this year!

Tonight is a meeting of the Planning Board and Fuzzy will be attending.

My youngest son and middle child is maturing into a fine young man.

I will tell myself that over and over as he gives me that teenaged rolled eyes face and says 'I knowwwww' everytime I try to remind him of something.

Sigh.

be well...

Thankful Thursday

How did I do three entries last week and miss Thankful Thursday?

A good question, for which, I have no answer. :::hanging head:::

:::perks up:::

But, I'm baaaaaaaack!

1. Coffee. Oh yes... yum.

2. Asthma meds. For Fuzzy. Very thankful indeed, because my son would not be able to breathe and might be one of thousands of children each year who die in asthma related deaths, usually because they are not being treated for it. (just one shameful aspect of our stupid healthcare system)

3. My husband. I have been going through a particularly difficult time of late for a variety of reasons that I am not going to recount here and now. Suffice it to say that much of it is relating to coping (or not) with chronic illness/pain. ALSO, suffice it to say that I have been, at times, difficult to deal with. I know, I know, hard to believe (:::snicker:::) but true. Hubby has been WONDERFUL and patient.

Except for the one lapse where a smart ass comment sent me careening out of the house in the truck, in my jammies, to McD's, but I won't hold that against him. Or mention it again. I don't think. :::shrug:::

4. Uncle K. He won't read this as he is computer deficient, but one of my kids will probably tell him, THANK YOU for being a good friend.

5. My parents, as always, for all their help.

6. My kids. The reason I put up their picture yesterday for my Wordless Wednesday post is because they are MY LIFE. MY HEART.

7. Our quirky humor and family life.

OMG, you have to hear this... too funny. So, Pumpkin Muffin was being told this joke that had to do all this math. She got each and every answer right and quickly, then at the end she had to 'QUICK, name a vegetable!'

Her answer: Banana!

Yep, that's my Distiguished Honor Student! Just brings a tear to your eye... as you realize our future is doomed!!! LOL

8. My friend Donna, a childhood friend, that I have reconnected with on Facebook! After many email conversations, we are getting together for coffee tomorrow! YAY! :-)

9. Books. This week I have read, Kalayna Price 'Twice Dead', Jane Austen 'Sense and Sensibility', Stephen Coonts 'The Disciple' and I am reading Mark Henry 'Battle of the Network Zombies' (for free on kindle this month!). The latter has had me laughing out loud so hard, I had tears rolling from my eyes! (A warning though, the book has graphic language, violence and sex - all done hilariously, but it wouldn't be everyone's cup of tea!)

10. American Idol! Not sure who is my absolute fave yet, but I am enjoying it!

Okay... time to go! Pumpkin Muffin will be walking in the door any second and will demand all my attention to discuss her day prior to starting homework!

be well...

Wordless Wednesday

Daughters

Pumpkin can be a force of nature.

Sometimes she just does not understand why the world will not bend to her will.

Today, it is her honors pre-algebra that is giving her fits. It isn't that she can't understand or learn what is required; she just doesn't think that she needs this particular knowledge at all or the way her teacher wants her to learn it and she wants the math curriculum to be changed.

NOW.

Pumpkin also is angry that she has her period again. She yelled earlier 'Who's stupid design idea was it that we get this thing for YEARS before we need it and for YEARS after we need it?'

As a peri-menopausal woman of 44, I agree wholeheartedly, but that isn't where I was going with this post. LOL

Although tempted to just shake my head at Pumpkin's stubborness and blow it off, maybe, just maybe, her stubborn unacceptance of these and many other inconveniences/occurences in her life will serve her well.

Maybe far better than my own quiet, calm, acceptance that was part of my personality growing up.

I guess only time will tell, and I am in no rush to find out. There is plenty of time for reflection on it all years from now when she is an adult and I am in a rocking chair, maybe with a few grandkids nearby.

And, I am enjoying the show too much to wish it away too quickly.

be well...

Thankful Thursday

1. I am thankful to be back on my blog!

2. Thankful that Fuzzy seems to have not broken his leg/knee in his injury yesterday, even if we are cautiously treating it as such.

3. Coffee. Coffee, coffee, coffee.

4. Thankful that my recent head cold/ear infection seems to have resolved itself quickly and on its own.

5. Thankful that at Pumpkin's 13th birthday party hotel sleepover I was able to get 4 hours of sleep. The girls got 2. lol And, very thankful that we got a reduced room rate and the adjoining room free, including breakfast.

6. Thankful that both my parents are alive and relatively healthy, and able to give me help and support with the house and the kids. I don't know how I would ever manage without them.

7. Thankful that both my parents are also my friends. We have fun together and enjoy being together as a family and even just going out as two couples. I am very blessed.

8. Thankful for all the silly things between my hubby and myself that make me laugh. It is so true that just laughing together or with the kids can be full of healing/soothing energy and it helps me cope.

9. That Fuzzy will be doing his Eagle Scout project soon over two weekends, and he and Hammer will be able to have their Court of Honor together in May! YAY!

10. Thankful for friends that in person and online make my life better. The support, love and consideration helps me cope. Coping can sometimes mean whining, complaining, being cranky and sad. Sometimes it means laughing, sharing and hugging. It's great to have pals to share the good and the bad.

11. Thankful for Facebook. Mindless games help me cope with pain and stress. Reconnecting and staying connected with old friends and new so easily is just a wonderful blessing. We are so lucky for technology that aids us in this way. Yes, you have to wary and set your security settings well and all, but it is worth the time and effort!

12. Thankful that Libby is moving better with her arthritis now that we are giving her buffered aspirin twice a day. :-) Thankful that she and the cats give us so much joy.

Well, that is it for today...

be well...

Thankful Thursday... yeah yeah yeah, it's Friday again...

:::sigh:::

I have round 3 of the 'Head Cold of Doom'. That was for you, Hammer. LOL

Apparently, the germs morphed when Hammer got it and he was able pass it back to me so by Tuesday I was a blubbering, nose blowing, sneezing coughing mess. Still same today...

I am hopeful that tomorrow will be better. Please. Really. Let it be better. I try to be good. Really really good.

1. Coffee. 'Nuff said.

2. Puffs. Yeah. My nose is that red.

4. Vaseline. It soothes the above nose.

5. Chapstick. Lips chapped too.

6. My new pj's from Land's End. Best Christmas present ever when you are repeatedly sick and wearing them nonstop. All day. And, night. Yeah, it's been like that.

7. My dad. He bought me my favorite donut yesterday from Dunkin' Donuts. He is the best. Truly. :-)

8. My dad again. On another errand after dinner he bought me my favorite potato chips. He rocks. And, he obviously feels sorry about the pathetic sneezing, nose blowing, hacking mess of a human I have been stuck as for the last 7 weeks on and off. Thanks, Daddy.

9. Books and computer. You have kept me sane.

10. Nyquil. Cherry. You give me 'sound' sleep for about 4 hours... ahhhh

Okay... so that is the 'sick' themed thankfuls for this week!

I said this on Facebook... whatever I did in my last life must have been awful because I am paying for it now! :-/

I have one serious thankful...

11. Fuzzy's ultrasound was negative for appendicitis and gall stones and all we seem to be dealing with is a little nervous stomach. Which sucks, but it is better than anything requiring surgery.

be well...

Thankful Thursday (yes, I know it is Friday... LOL)

So,I was all excited that we were going to get snow today... but we didn't. Just an inch of nuisance. Feh. Gimme a real snow storm please!

I am late, but better late than never, and I am always ready to count my blessings!

1. Coffee. Yep. After fighting bronchitis twice this holiday season and having this congestion linger on much too long, coffee is the only way my brain and body seem to be waking up. And, we had that uber cold spell in the 20's and my steaming cup of coffee kept the chill away! :-)

2. Family. I was able to see most of my family and friends over the holidays and I really enjoyed seeing everyone.

3. My parents. My Mom and Dad who spoiled us all at the holidays!

4. Fuzzy's new bowling ball! His first two practice games were a 224, a new high for him, and a 168! Very nice!

5. Farmville! Great for hours of enjoyment while hacking up a lung and wishing you could sleep.

6. Facebook! Recently, I it has been a blast! One evening this week about 6 of my friends from high school and I had a really giggly silly girl conversation and it was so much fun!

7. Books. I highly recommend the new Steve Berry 'The Paris Vendetta'. Awesome! Also the new Jeff Shaara 'No Less Than Victory' his final in the WWII trilogy. Fabulous. On a lighter note also good reads Wendy Roberts 'Dead and Kicking' and Charlaine Harris 'Grave Secret'.

8. Kindle. I love my Kindle. My daddy bought it for me last year and even though there are certain authors I still want in a hardcover book, there are plenty I don't and read on my Kindle which is such a delight for my hands!!! :-)

9. Uncle K. Things are still not completely settled for him, but they are moving forward. Should be all done soon. I am thankful for the time he spends with my kids and being a friend to Hubby and myself.

10. Libby, Susie, Tina and Pumpkin. My dog and 3 cats. They always provide me with comfort, but this holiday season, lots of laughs too. Lots of cat fights over the tree skirts etc... very amusing!

Well, signing off now!

be well...

Thankful Thursday

What started out to be a crazy overscheduled week really settled down rather nicely!

I went to the new rheumatologist yesterday with Hubby. I was not happy to have to go to a male doc, as I have found that female docs tend to be more understanding and in tune. However, I found the new rheumy very understanding and he really listened and heard all my concerns.

It was actually great having a new set of eyes on my issues. He did xrays and a sonogram of my hands and wrists, right there in the office, along with a complete blood workup! I loved one stop shopping!! I usually have to run to one place for xrays and another for blood.

I have a lot of neuropathy issues, always have, his fresh eyes have given us a new plan of attack as well as another diagnosis. He is confident that Fibromyalgia is also rearing its ugly head in my body. Not surprising as it goes hand in hand with Lupus and RA.

The plan is to try Lyrica which will address the neuropathies. The numbing, tingling, weakness and balance issues. As I have mentioned, MS has been ruled out before, and we are sticking with that assumption unless there is a reason to revisit it.

Also to be added will be Provigil, a medication that will help with what to me is the most debilitating part of the disease - fatigue. And, also the cognitive issues. Hopefully, I will be sleeping better with Lyrica and the Provigil will do its magic and I will be like a new person in a few months!

I am happy to have a plan of attack! And, I visit him again on 12/1.

Okay... on to my blessings! :-)

1. New rheumy. So far so good! And, a plan. I like plans.

2. Hubby! Home with me yesterday for the doctors, which was a very long comprehensive 3 hour visit. BUT, today he surprised me by staying home again! Yay!

3. Piano. Pumpkin is having her lesson as I type this... I love it! Christmas carols... have to get ready!

4. Hammer. We have spent this week preparing his application for Eagle Scout and planning his project. Part of that process was gathering letters of recommendation for Hammer. There has been an overwhelming outpouring of love and respect for him. :-)

Kathy, Karol, Dave, Bill, K, you all overwhelmed me with your letters. Thank you. Mom and Dad and Hubby... perfect and just as I expected... we have such a special boy and I am honored that he is ours.

5. Fuzzy. In the last week or so, he has been trying harder and pulling up into A's. If he wanted to he could have straight 100's... it's all about what you put into it, he has the ability. Just needs to work it!

6. Coffee!!!! After months of coping with our Keurig coffee maker malfunctioning and needing to be tweaked each and every day... My dad gifted Hubby and I with a new one for our anniversary - early! YOU ROCK, Dad! ;-)

Well, I think I have taken up enough of your time!

Go to go farm! LOL

be well...

Fur Elise

Hello Blogging Buddies!

Not a lot going on here in my little corner of the world.

I am still coping and in a better place thanks to D'Nile. Is that the pyramids I see over there? Yep. Firmly entrenched, I am.

Feh. It works, and it is silly to worry without knowing what to worry about. And, the pain I can cope with.

Kids are good. Fuzzy is still learning to cope with the fact that he has to WORK to get A's in his high school honors classes. Pumpkin has one honor's class and she is learning to cope with that a bit too.

Hammer is halfway through the planning phase of his Eagle Scout project, which looks to be happening on 11/7. More on that once everything is official! Yay!

Hubby was cranky and tired mostly this weekend. Feh.

We basically had a very quiet weekend at home, which is really unusual and was really needed. I think we all enjoyed it.

The best part of the weekend was listening to Pumpkin practice her piano and hearing Beethoven's 'Fur Elise' which she worked on quite a bit. Very nice.

Tonight is a big NY sport night! We have the Giants on NBC and the Yankees on Fox! WOOHOO!

More soon...

be well...

Thankful Thursday

Time to count blessings and not a minute too soon!

Panic mode is over, and I am firmly entrenched back in my denial place! LOL

1. I am grateful for my house, my home and my family.

2. I am grateful for my health insurance.

3. I am grateful for the meds that I have to help me and the doctors that are my partners in my healthcare.

4. I am grateful for the friends I have in my life.

5. I am grateful for my online friends, their availability and support have been invaluable over the last 7 years of coping with chronic illness. (rheumatoid arthritis, and for the last two years the brain thingy)

6. I am grateful for the technology that allows me to not only keep in touch but that lets me play stimulating and challenging games - some for fun - some for brain exercise - all of which help me cope and keep my mind off of worrysome stuff.

7. I am grateful for my pets. Yes, even though cleaning up cat hairballs and dog puke sucks, the unconditional love and joy they give daily far surpasses the difficulties they present on occasion.

8. I am grateful for Boy Scouts. Hammer has begun the planning for his Eagle Scout project which should be executed in the next 2 weeks. Fuzzy will begin planning his in the new year as he is just completing the last badge. Scouts has afforded the boys many opportunities for leadership, community service and personal growth.

9. I am especially grateful this week for my Hubby realizing that a hug, a cup of coffee and a snack would go a loooooonnnnng way.

10. I am grateful for the outlet that my blog and Facebook give to me and therefore, I am for YOU, the reader.

11. I am also grateful for the clarity health issues have given me in life. It sharpens into focus that which is truly important; those special gifts and blessings that no illness can take away.

Life is good. Thanks for being a part of it!

be well...

And So It Goes...

Need to do a stream of consciousness post here...

So, our new insurance started and my rheumatologist who is at the #3 hospital in the US for rheumatology (behind Mayo and Hopkins), Hospital for Special Surgery in NYC, is NOT in it. Crap.

So, I have an appointment with a highly recommended local guy. We will see how it goes. I will still go to see my HSS rheumy once a year out of my own pocket. I will not give her up completely. And that is another thing. I LOVE having a woman doc. Not ONE woman rheumatologist in all of northern NJ. ACK. Pisses me off.

My jaw/spasm/pain/lower lip thing is still happening. This may or may not be related to the rheumatoid arthritis. I may need to be retested for MS as this is a common MS symptom. It may or may not be related to the brain thingy. Ack.

My right hand is swollen and painful. That is unusual. Usually, my left is the worst one and the right is just achey. Strange. Both my elbows are swollen and clicking and are red and inflammed. Right hip doing its usual annoying achey pain thing.

My diet. Well, I haven't gained, but I haven't lost either. That made me cranky and I cheated all last weekend, but I still didn't gain. Not bad. I was mostly good this week, but not great. I am keeping track of the calories and most days I have been under, but probably not the best choices.

Fuzzy and Pumpkin have both had reality checks that they may have to actually improve and utilize study habits to get the A's they usually get without lifting a finger in school. LOL I have worked with both of them some, but they were both a little resistant. Also, they have slacked on their chores lately. So, they have the punishment of 'Going Amish' hanging over their heads this weekend...

Foolishly, the Terribly Twosome also tried to act 'entitled' this week. Very, very dumb. Nothing pisses their father off more than when they act unappreciative and feel 'entitled' to their goodies. ie; computer, vid games etc. Again... a reality check was delivered.

Hammer has been great. He always is happy to help, never forgets his chores, and is ALWAYS appreciative and understanding. His biggest problem is writing. He hates it. Having Asperger's/being on the Autistic Spectrum he has fine motor issues and being dysgraphic - where writing actually hurts and is very difficult is one of his issues. Although, over the years he has gotten much better, it is a really difficult hurdle for him and something that I need to prod him to work on. It is hard sometimes because I hate causing him discomfort. :(

Even though we have been in school since 9/9 I am still compiling paperwork for Fuzzy's asthma plan. Tuesday we go to the doc's office to get that all settled. sigh.

Things have really been hectic. Lots of Scout meetings, school meetings, doc appointments etc. I really hope it all settles down.

I am going back to Atlantic City with my mom on business again this year in November. I am looking forward to it, as always. It is nice to get that time with my mom.

Tuesday night we have a meeting with the scoutmaster planning out Hammer's Eagle Scout Project. I am excited for him because he worked so hard on all his badges and this is the last step. If all goes smoothly, Hammer will be the 50th Eagle out of this troop!!! A special honor indeed.

I haven't seen Kathy and my sweet little nephew J in over a month. It is just a little under a month for my cousin Karol and my other nephews. This time of year is always hard. School, holidays, crazy stuff. Sigh.

Hubby and I will be celebrating two milestones soon. October 26th will be 19 years from when we became 'officially' engaged, with the ring and all. And, then exactly two weeks later on 11/9 it will be our 18th Wedding Anniversary. Wow. Time flies... sometimes it really seems like yesterday. How could it be 18 years? I don't feel like 18 years have passed by... yet it has.

There are many who never thought that we would make it this long. Our romance was quick and whirlwind... how could we really KNOW. Well, we did. And, we still feel the same. I was very lucky to find my other half, a best friend that I can laugh and love and journey through all of life's challenges with by my side. :-)

Okay, enough rambling for today...

be well...

Thankful Thursday

WOW! Time flies doesn't it? Loved the above pic... he he he...

Here we are at Thankful Thursday again!

1. Gettysburg Trip. I am really looking forward to getting away and experiencing Gettysburg again. I love history!

2. Coffee. A must have everyday, even on trips!

3. Laughter. I watched the first episode of the new show 'Modern Family' last night. We have them all tivo'd. OMG, I laughed so hard I lost my breath and cried. It was great!

4. The Arts. Dancing, singing, music, painting, sculpture, etc. The beauty and talent of those around us can be awe inspiring. Listened to some Mozart last night... brought tears to my eyes. Watched dancing show and was amazed at some of the talent...

5. Farmville. Totally addicted and having fun with the distraction it provides.

6. Life. Whether easy, hard, painful, fun, happy or sad it is to be lived and savored. Autumn is my favorite season, watching nature's exquisite show aflame against a grey blue sky is like none other!

Leaving for Gettysburg tomorrow after some more running around! Ack! Will check in at some point next week, maybe over the weekend if there is time!

be well...

I'm Still Standing

Mondays. Never know what they will bring!

We got hit with the engine light on in the car. Ack.

Thankfully, our local 10 minute oil change place has a computer thingy and it said that it was the oil pressure sensor which may/or may not have been fixed by having an oil change. It worked. They changed the oil and the filters and the pressure came back up and the light went off.

YAY! We leave for our Boy Scout trip to Gettysburg on Friday and we do NOT need to be worrying about anything with the car when traveling about 5 hours from home!

In preparation for our trip I am rereading the book 'Killer Angels'. It is the book that the movie 'Gettysburg' was based upon, in case you are not familiar with it. I have read the book many times before, I am guessing this may be around the 12th time. Definitely more than ten.

I am going to do a presentation for the Scouts and parents about the Battle of Little Round Top and Pickett's Charge and the spot called the 'high water mark' of the Confederacy, by the 'copse of trees'. I am going to try to make it more real for the boys, have them stand in positions of both Blue and Grey soldiers and really get a feel for how it happened.

This is my third trip to Gettysburg personally, so being familiar with it already will help sharing this amazing place in our history with the boys.

It is a busy week around here! Hubby has his 'Man Scout' meeting of all the leaders tonight. Tomorrow night is the Senior Patrol Leader meeting, which Fuzzy runs as the 'head' scout, and all the patrol leaders, their assistants etc. It is basically a planning meeting. Then, Wednesday night is the regular scout meeting.

Thursday morning as a member of the Board of Health I will be working the free flu shot clinic at our Senior Center. Just regular shots, not H1N1. Then, Thursday night is Fuzzy's high school Back to School night. Friday morning is a meeting at the school with regard to his asthma and the special 504 set up we have to manage it.

Somewhere on Thursday and Friday we have to pack for the trip as we leave in the mid afternoon on Friday!

As I said, busy, busy, busy! Never a dull moment around here and no time for my rheumatoid arthritis to be acting up. Not sure how that is all going to play out, but I am doing better. The hip has settled down to a dull ache and I have no problems with putting weight on it! Yay! I may still look into taking a prednisone taper though... not sure.

Fuzzy and my dad are shooting in trap/skeet league together this fall. It is Fuzzy's second time around, my dad's first. Today, Fuzzy hit a new high with 17 of 25 in his trap rounds! He was thrilled.

I guess that about catches you up with us!

be well...

Ode to Joy

I am listening to Pumpkin Muffin playing 'Ode to Joy' on the piano right now. Yay! After taking a year off, she is back to piano! I am so happy.

I have a funny Pumpkin story for you all.

I don't know if it speaks to the power of female persuasion or my daughter's bossiness, but here it is.

The first week of school in their Spanish class they decided to do a review of basic conversation. The kids were broken up into groups. Pumpkin was paired with two boys. One is a friend, J, whose mom is from somewhere in South America and J has been learning Spanish his whole life.

Pumpkin in her daily recitation of every detail of her day (yes, EVERY detail) tells me the next day that they only got a 95% because she must have spelled 'Aloha' wrong.

Aloha? I asked her why did she have 'Aloha' on there at all. She said, 'Mom, it's Spanish for 'hello'!' (read this with all the condescending teen attitude you can muster)

I state, 'No, Pumpkin. Aloha is Hawaiian for hello. Hola is Spanish for hello.

Pumpkin: blink blink

Then, 'Oh, well there ya go then!', followed by hysterical laughter from the two of us.

I asked her to please ask J how come (being from a half Spanish home) he did not step in and point out this glaring error.

So, the next day, Pumpkin comes home and begins her daily recitation of every detail of her day.

I ask, 'Skip to J, what did he say about Aloha?'

Pumpkin smiles and said, 'J said he thought it was just a different Spanish word for hello because after all, I am usually right!' (read this with the smug satisfaction of a woman who has realized she has got it going on!)

So, there ya have it.

Again, not sure if it was her confidence, or her bossiness, but my daughter has got some man management skills! LOL

ps. My hip is feeling better. I can put my full weight on it. That is key. The pain is doable.

Looking forward to the Gettysburg trip. The Boy Scout Gettysburg Campsite is awarded once a year via a lottery system. It is very limited. By October 15th of the preceding year you have to apply. Then, in February of the year you wish to camp, you receive notification of whether you received your first choice or second choice weekend.

As you can imagine, a three day weekend like Columbus Day is a tough one to get, so were lucky. The campsite I believe is also only open May thru the end of October.

Another cool thing is that there are 2 battle reenactments that weekend, one Saturday and one Sunday that the boys are going to be able to witness!

As I mentioned, we visited Gettysburg as a family before and loved it. I also went when I was a kid. I love history. (and science, and english, and yeah, just learning in general... lol)

Being in Gettysburg is awe inspiring. The history is EVERYWHERE around you. Even in the building that houses the Starbucks you can see the holes in the brickwork from small cannonballs and musket fire. It is really amazing. If you ever get a chance to go, do it.

Okay... signing off...

be well...

Thankful Thursday

I am sure you are all familiar with this phrase!

RA SUCKS. Ok... enough whining, I was having a good week and in spite of my latest flare issue resulting in trochanter bursitis or hip impingement or just plain old BUM RA HIP ISSUES, I am going to CONTINUE having a good week.

Thankfuls..

1. Hubby. I asked Hubby to stay home so I could load up on the vicodin and get some 'better/more' sleep. And, Hubby stayed here, working from the house. Thank heavens for technology that makes this possible! Internet, Blackberry, fax machines...etc.

2. Kids. All three have gone above and beyond in supplying help to Mommy during the latest flaring and this hip issue.

3. Boy Scouts. It provides great leadership skills and experiences. For the family too. Next weekend we have a Scout trip to Gettysburg. It will be our second as a family. The boys and Hubby will be camping ON THE BATTLEFIELD. Soooooo awesome. Pumpkin and I will be camping at the Marriott Courtyard! LOL

Positive energy and prayers needed for my hip and flare to go AWAY so I can keep up in Gettysburg next week!

I may have to do a prednisone taper. I am thankful that I have this opportunity, yet its side effects make me hesitant. So, waiting at this point to see what happens.

4. Autumn. Oh how I love that crisp feeling in the air! No other season gets that snap. Nature's kaleidescope show is soon to begin on the trees... sigh. I love it! ::: sigh :::

5. Coffee. Tried a new flavor from Green Mountain called Pumpkin Spice. Not as awesome as Gingerbread, but close! Yum.

ps... coffee machine still acting up. BJ's has one on sale thank the caffeine gods.

6. NCIS and NCIS LA! I love both these shows! Yay! I am just happy that the new fall season is upon us and we have NEW things to watch! Some just fun, some thought provoking, some full of adventure and puzzles.

7. Life. It is good. I have people I love all around me. My kids, Hubby, and parents. I have friends who care. A roof over my head and money to pay the bills. Books and computer to entertain and educate.

COULD BE MUCH WORSE.

And, that fact is NOT lost on me for one minute!

8. Pets. Even though Libby keeps pooping on the front lawn and pissing off my dad, even though Tina still hates me and loves Hubby who hates her, even though Suzy knocked over the hamster cage AGAIN yesterday, even though Pumpkin (the cat) is very obviously declining as she ages --- I wouldn't trade the love, comfort and entertainment that you all provide on a daily basis.

The hamsters could go though. Anyone? lol

9. Diet. It has been a tough two weeks. Feeling the loss in my clothes, but the scale stayed the same. First, I went 2 pounds while Aunt Flo visited, and now, I am back down but still holding at 10 pounds total. This is pissing me off, but this is also how we women lose. So, I am waiting out the plateau. I can't exercise because of the hip... frustrating.

I believe that covers it. :-D

May this entry find you well and happy in your world!

be well...

Mad World

Not a great week so far for me. Beware, whiny post ahead.

I have a new strange flare thing happening for a while now but the last few days have been particularly uncomfortable. I am having a spasm in a jaw/facial muscle accompanied by pain and a hot/icy sensation. I know it is a nerve thing (having had them before) and it is pissing me off.

Hubby has also been pissing me off.

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There. I. Said. It.

First, on Saturday he said something really hurtful. He realized it wayyyy fast, apologized repeatedly and profusely, but you know what? You can't unsay it. No rewind and do over switch.

I put that away to celebrate the birthday and all was fine, and it would have gone away at that if yesterday am didn't happen.

Hubby got in one of his pissy don't want to deal with driving the kids but mostly don't want to deal with your disease/RA/incovenience moods. He usually drives on Mondays as I take my methotrexate Sunday night. Of course all summer it was a non-issue, but now it is school time again.

It is a pain for him but I deliberately take the medicine then so it doesn't interfere with the weekend, and usually Mondays are quiet days around here. If Hubby isn't driving that means he drives the kids, drops the car back here at the house and then walks to the bus. I get it is annoying but I still don't need or deserve the mouthful of crap before he did it.

The RA is not my fault. I can't control it, and didn't choose it. Mornings have been and will always be bad. The WORST time of day for me. Pain, walking thru pea soup (fatigue), not good.

Then, this morning I get up thinking he is going on the bus and I don't feel like any crap from him so I am gonna do the kids and all he will have to do is get up and go.

He tells me 5 minutes before I leave that he needs the car.

WTF? Sooooooo, you let me get up do the kids etc, when EVERY other time you need the car you tell me the NIGHT BEFORE so I can SLEEP in and you just get up a little earlier do the kids and bolt straight away with the car.

How passive aggressive is that? I am totally pissed off.

THEN, let's add in the wonderful terrorism threat. They think that the cell and it's plan of bombing either subways or other sites in NYC is still in effect.

So, I get to be pissed off at Hubby AND a nervous wreck that something bad will happen to this man that carries my heart with his every day.

:::Sigh::: And, I am sore all over because rain is coming in. Dammit.

Oh yeah, I am a ball of freakin' sunshine today.

Pumpkin is bringing home her best pal, Penelope (nickname). I guess I have a little less than 2 hours to get over myself then.

Hammer is helping me do wash and gave me a nice shoulder rub. He is just the sweetest man-child ever. :-)

Okay... I think I feel a little better after venting for all of you.

A little... maybe another cup of coffee will help. And, since I am not driving anywhere anyhow a 1/2 a vicodin. :(

be well...

Thankful Thursday

I just love this lolcat. I hear his voice in my head like Ralph from the Honeymooners!

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I don't know why, but lately when I post a picture I can't have any hard returns in my entries. I know it is probably something stupid that I am doing, so if you can tell me what... please feel free! LOL

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1. Hubby. You know what Beth and Ken, he really does listen to me about 90-95% of the time. Like Beth said, it is just that 5-10% - whoa nelly! LOL ;-)

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2. Sleep. I got 3 hours last night. It could have been worse. I finally fell asleep around 1:30 and woke up WIDE AWAKE at 4:30am. I read online on my iphone for a while, then I decided that if I was still awake when my mom went to work at 6ish, I was getting up. :::waving::: Yep, hi mom! LOL

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3. Kids. They are not happy that I just woke them. Pumpkin grumbled her way down the steps and collapsed under a blanket in the family room to get some more Zzz's. Fuzzy grabbed his fruit bar and iced tea, added a blanket and put on the news. The morning routine has begun! (Hammer gets to sleep in until 9ish, and Hubby told me to go away until after I drove the kids to school. Ok then, guess no morning meeting for him!)

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4. Donna. Thank you. You know why. It made me feel 'useful' for the first time in a long time! And, you are right, when you know someone it is easier... so maybe at some other point in the future.

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5. My cousin Karen. As I mentioned yesterday, life gets away from you and sometimes you just have to grab it back and hang on again!

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6. Coffee. I have a feeling it will be instrumental in my survival today. After all, I am awake but it isn't like I am bouncing around ready to do a tango! It is more like the 80+ year old shuffle around here right now.

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Ahhh Green Mountain Caramel Vanilla. YUMMY!!! Cup 2 down the hatch! WOOHOOO!

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7. Vicodin. Well, I wouldn't have even gotten 3 hours sleep without that!

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8. Subway and Dawn and John. I have to tell you, having a friend that you grew up with (Dawn) open, own and work at a Subway in your town is awesome. The food is uber-fresh, the place is SPOTLESS clean. I am in love with the Veggie Delight! Maybe I can give Jared a run for his money, as I am up to 8lbs lost now! Yay!

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9. The 'Lose-it' Application on my Iphone. First, I should thank Hubby for indulging me with the iphone last year as my anniversary/birthday gift. The 'Lose-it' app is amazing. I track my weight and my calories and more on it. Chronicling each item I put in my mouth is really a great weight loss tool!

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10. Yankees. They are so hot and this season has just been AWESOME! And, Traci, doesn't matter one iota that they lost the game on 9/11 that Jeter hit the 2722 hits within. You have no idea unless you live in this area the 'lift' that it gave to everyone to have something really fun and positive for that date now to reflect on. ;-)

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Okay... time to torture the kiddies to brush teeth, get dressed, recheck school stuff etc.

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Have a great Thankful Thursday everyone!

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be well...