Thursday, September 8, 2011

Ten Years Gone

Here is my original post detailing the horrors of 9/11/2001 for me from the 5th year anniversary:

Here also is my blog post containt the 2996 Project links for our friend, John M. Griffin.

We will never forget you, John.

We will NEVER FORGET any of you.

People who didn't live in the shadow of NY or the Pentagon or even Shanksville, PA cannot know and truly understand the magnitude of how it was to live each day with the smell, the fear, the horror - and how it changed especially NYC permanently.

The Pentagon is fixed. The grass is regrown in the field in PA.

In NYC we still have a huge hole, a gaping wound in our skyline and our hearts that we bear each day. Even when 'something' is there in its place, it will never be our Twin Towers.

be well,

Tuesday, July 12, 2011

All She Wants To Do Is Dance

So, that is Pumpkin, now 14, graduating from 8th Grade, junior high, and stepping off into the world of high school...

In March we found out Pumpkin was not having growing pains in her feet, ankles and knees, but instead it was a form of systemic arthritis. Since then it is confirmed that Pumpkin has JRA, juvenile rheumatoid arthritis.

Of course, having me as her mom, there was a higher chance of it happening than if I didn't have the lupus etc. Sigh. How do you deal with that? Well, you don't really. You feel like shit. You feel guilty. You feel angry. You feel sad.

Then, you realize none of those emotions - and certainly not the 'blame game' is going to help anyone. Especially, not Pumpkin.

So, you shove all that down and focus on her and her needs, wants and desires and making her life as uncomplicated and easy as you can while coping with a chronic disease.

We have a great pediatric doctor. Her office is also fantastic and I am very happy with their responsiveness and help so far. Believe me - that is half the battle.

We address the symptoms by helping her cope with the pain and anti-inflammation via medicines and we address the disease directly by adding a DMARD (disease modifying anti rheumatic drug), in this case methotrexate. It suppresses her immune system so it will be more difficult for it to attack itself. I, too, am on the same drug once a week.

Pumpkin just started this bigger gun last week with a small dose and this week with her regular dose of 15mgs, and she has tolerated it well and I am happy to say she is feeling better.

Usually, it takes a few weeks for it to kick in, but a lucky few get instant relief. It seems she has been that lucky. :::knocking wood:::

In fact she is walking on the treadmill right now, second day in the row!

The road ahead will not be without its obstacles. However, I will be there paving the way the best way I know how.

I may not be able to bend the universe to my will but I WILL make it quiver a bit when it comes to my babies and making life right for them.

And when she wants to dance... she will.

be well,