Tuesday, July 12, 2011

All She Wants To Do Is Dance

So, that is Pumpkin, now 14, graduating from 8th Grade, junior high, and stepping off into the world of high school...

In March we found out Pumpkin was not having growing pains in her feet, ankles and knees, but instead it was a form of systemic arthritis. Since then it is confirmed that Pumpkin has JRA, juvenile rheumatoid arthritis.

Of course, having me as her mom, there was a higher chance of it happening than if I didn't have the lupus etc. Sigh. How do you deal with that? Well, you don't really. You feel like shit. You feel guilty. You feel angry. You feel sad.

Then, you realize none of those emotions - and certainly not the 'blame game' is going to help anyone. Especially, not Pumpkin.

So, you shove all that down and focus on her and her needs, wants and desires and making her life as uncomplicated and easy as you can while coping with a chronic disease.

We have a great pediatric doctor. Her office is also fantastic and I am very happy with their responsiveness and help so far. Believe me - that is half the battle.

We address the symptoms by helping her cope with the pain and anti-inflammation via medicines and we address the disease directly by adding a DMARD (disease modifying anti rheumatic drug), in this case methotrexate. It suppresses her immune system so it will be more difficult for it to attack itself. I, too, am on the same drug once a week.

Pumpkin just started this bigger gun last week with a small dose and this week with her regular dose of 15mgs, and she has tolerated it well and I am happy to say she is feeling better.

Usually, it takes a few weeks for it to kick in, but a lucky few get instant relief. It seems she has been that lucky. :::knocking wood:::

In fact she is walking on the treadmill right now, second day in the row!

The road ahead will not be without its obstacles. However, I will be there paving the way the best way I know how.

I may not be able to bend the universe to my will but I WILL make it quiver a bit when it comes to my babies and making life right for them.

And when she wants to dance... she will.

be well,


Sandisan said...

((Dawn)) knowing how to cope is half the battle and having good doctors is the other half. You know my wish has been for so long that they would find cures for these dam diseases..maybe soon...please tell her congratulations on her graduation...it is a very special time for her...love Sandi

Traci said...

I'm so sorry to hear this! Poor kiddo! And a gentle hug to her mom!

Beth said...

Great to see a post from you, but I'm sorry about the circumstances.

One of my nieces has RA. She's been through the mill, but she maintains a wonderful attitude through it all and is a fantastic young woman. I'm sure that Pumpkin will have the same sort of courage and strength...especially with you in her corner. :)

Big hugs,

Marty said...

Hi Dawn,
I'm sorry to hear about this but your daughter is at least lucky to have you in her corner, that's for sure!

Little Libby said...

Hope is never out of my thoughts and I'm "hoping" that she can manage this disease with the fortitude that you do. Hugs.