Thankful Thursday

Time to count blessings and not a minute too soon!

Panic mode is over, and I am firmly entrenched back in my denial place! LOL

1. I am grateful for my house, my home and my family.

2. I am grateful for my health insurance.

3. I am grateful for the meds that I have to help me and the doctors that are my partners in my healthcare.

4. I am grateful for the friends I have in my life.

5. I am grateful for my online friends, their availability and support have been invaluable over the last 7 years of coping with chronic illness. (rheumatoid arthritis, and for the last two years the brain thingy)

6. I am grateful for the technology that allows me to not only keep in touch but that lets me play stimulating and challenging games - some for fun - some for brain exercise - all of which help me cope and keep my mind off of worrysome stuff.

7. I am grateful for my pets. Yes, even though cleaning up cat hairballs and dog puke sucks, the unconditional love and joy they give daily far surpasses the difficulties they present on occasion.

8. I am grateful for Boy Scouts. Hammer has begun the planning for his Eagle Scout project which should be executed in the next 2 weeks. Fuzzy will begin planning his in the new year as he is just completing the last badge. Scouts has afforded the boys many opportunities for leadership, community service and personal growth.

9. I am especially grateful this week for my Hubby realizing that a hug, a cup of coffee and a snack would go a loooooonnnnng way.

10. I am grateful for the outlet that my blog and Facebook give to me and therefore, I am for YOU, the reader.

11. I am also grateful for the clarity health issues have given me in life. It sharpens into focus that which is truly important; those special gifts and blessings that no illness can take away.

Life is good. Thanks for being a part of it!

be well...

Walk Like an Egyptian

You know what? I like denial. I like my 'denial' world better.

Does that make me a bad person?

::: sigh :::

More soon...

be well...

And So It Goes...

Need to do a stream of consciousness post here...

So, our new insurance started and my rheumatologist who is at the #3 hospital in the US for rheumatology (behind Mayo and Hopkins), Hospital for Special Surgery in NYC, is NOT in it. Crap.

So, I have an appointment with a highly recommended local guy. We will see how it goes. I will still go to see my HSS rheumy once a year out of my own pocket. I will not give her up completely. And that is another thing. I LOVE having a woman doc. Not ONE woman rheumatologist in all of northern NJ. ACK. Pisses me off.

My jaw/spasm/pain/lower lip thing is still happening. This may or may not be related to the rheumatoid arthritis. I may need to be retested for MS as this is a common MS symptom. It may or may not be related to the brain thingy. Ack.

My right hand is swollen and painful. That is unusual. Usually, my left is the worst one and the right is just achey. Strange. Both my elbows are swollen and clicking and are red and inflammed. Right hip doing its usual annoying achey pain thing.

My diet. Well, I haven't gained, but I haven't lost either. That made me cranky and I cheated all last weekend, but I still didn't gain. Not bad. I was mostly good this week, but not great. I am keeping track of the calories and most days I have been under, but probably not the best choices.

Fuzzy and Pumpkin have both had reality checks that they may have to actually improve and utilize study habits to get the A's they usually get without lifting a finger in school. LOL I have worked with both of them some, but they were both a little resistant. Also, they have slacked on their chores lately. So, they have the punishment of 'Going Amish' hanging over their heads this weekend...

Foolishly, the Terribly Twosome also tried to act 'entitled' this week. Very, very dumb. Nothing pisses their father off more than when they act unappreciative and feel 'entitled' to their goodies. ie; computer, vid games etc. Again... a reality check was delivered.

Hammer has been great. He always is happy to help, never forgets his chores, and is ALWAYS appreciative and understanding. His biggest problem is writing. He hates it. Having Asperger's/being on the Autistic Spectrum he has fine motor issues and being dysgraphic - where writing actually hurts and is very difficult is one of his issues. Although, over the years he has gotten much better, it is a really difficult hurdle for him and something that I need to prod him to work on. It is hard sometimes because I hate causing him discomfort. :(

Even though we have been in school since 9/9 I am still compiling paperwork for Fuzzy's asthma plan. Tuesday we go to the doc's office to get that all settled. sigh.

Things have really been hectic. Lots of Scout meetings, school meetings, doc appointments etc. I really hope it all settles down.

I am going back to Atlantic City with my mom on business again this year in November. I am looking forward to it, as always. It is nice to get that time with my mom.

Tuesday night we have a meeting with the scoutmaster planning out Hammer's Eagle Scout Project. I am excited for him because he worked so hard on all his badges and this is the last step. If all goes smoothly, Hammer will be the 50th Eagle out of this troop!!! A special honor indeed.

I haven't seen Kathy and my sweet little nephew J in over a month. It is just a little under a month for my cousin Karol and my other nephews. This time of year is always hard. School, holidays, crazy stuff. Sigh.

Hubby and I will be celebrating two milestones soon. October 26th will be 19 years from when we became 'officially' engaged, with the ring and all. And, then exactly two weeks later on 11/9 it will be our 18th Wedding Anniversary. Wow. Time flies... sometimes it really seems like yesterday. How could it be 18 years? I don't feel like 18 years have passed by... yet it has.

There are many who never thought that we would make it this long. Our romance was quick and whirlwind... how could we really KNOW. Well, we did. And, we still feel the same. I was very lucky to find my other half, a best friend that I can laugh and love and journey through all of life's challenges with by my side. :-)

Okay, enough rambling for today...

be well...

Thankful Thursday

I am sure you are all familiar with this phrase!

RA SUCKS. Ok... enough whining, I was having a good week and in spite of my latest flare issue resulting in trochanter bursitis or hip impingement or just plain old BUM RA HIP ISSUES, I am going to CONTINUE having a good week.

Thankfuls..

1. Hubby. I asked Hubby to stay home so I could load up on the vicodin and get some 'better/more' sleep. And, Hubby stayed here, working from the house. Thank heavens for technology that makes this possible! Internet, Blackberry, fax machines...etc.

2. Kids. All three have gone above and beyond in supplying help to Mommy during the latest flaring and this hip issue.

3. Boy Scouts. It provides great leadership skills and experiences. For the family too. Next weekend we have a Scout trip to Gettysburg. It will be our second as a family. The boys and Hubby will be camping ON THE BATTLEFIELD. Soooooo awesome. Pumpkin and I will be camping at the Marriott Courtyard! LOL

Positive energy and prayers needed for my hip and flare to go AWAY so I can keep up in Gettysburg next week!

I may have to do a prednisone taper. I am thankful that I have this opportunity, yet its side effects make me hesitant. So, waiting at this point to see what happens.

4. Autumn. Oh how I love that crisp feeling in the air! No other season gets that snap. Nature's kaleidescope show is soon to begin on the trees... sigh. I love it! ::: sigh :::

5. Coffee. Tried a new flavor from Green Mountain called Pumpkin Spice. Not as awesome as Gingerbread, but close! Yum.

ps... coffee machine still acting up. BJ's has one on sale thank the caffeine gods.

6. NCIS and NCIS LA! I love both these shows! Yay! I am just happy that the new fall season is upon us and we have NEW things to watch! Some just fun, some thought provoking, some full of adventure and puzzles.

7. Life. It is good. I have people I love all around me. My kids, Hubby, and parents. I have friends who care. A roof over my head and money to pay the bills. Books and computer to entertain and educate.

COULD BE MUCH WORSE.

And, that fact is NOT lost on me for one minute!

8. Pets. Even though Libby keeps pooping on the front lawn and pissing off my dad, even though Tina still hates me and loves Hubby who hates her, even though Suzy knocked over the hamster cage AGAIN yesterday, even though Pumpkin (the cat) is very obviously declining as she ages --- I wouldn't trade the love, comfort and entertainment that you all provide on a daily basis.

The hamsters could go though. Anyone? lol

9. Diet. It has been a tough two weeks. Feeling the loss in my clothes, but the scale stayed the same. First, I went 2 pounds while Aunt Flo visited, and now, I am back down but still holding at 10 pounds total. This is pissing me off, but this is also how we women lose. So, I am waiting out the plateau. I can't exercise because of the hip... frustrating.

I believe that covers it. :-D

May this entry find you well and happy in your world!

be well...

Thankful Thursday

Exactly, dear kitty! Me too!

So, the time has come for me to reflect on the many blessings in my life!

1. Coffee. Hey, some weeks it isn't on the list at all, or near the top. This week - well, it has earned its place. Not a lot of good sleep happening.

2. Friends. So many to thank in so many ways... you know who you are... online, in person, via the phone, via the email. You all rock. Thanks for your support this week.

3. Kids. At least they are healthy and normal enough to bicker with each other! LOL They are wonderful kids, and I have been blessed with the honor of being their mom. I am thankful for that, always.

4. Hubby. You make me laugh, you make me nuts, but you always make me happy that you are there at the end of the day, good or bad. Thank you.

5. My parents. I am so blessed that they share my life on a daily basis. They have helped make what seemed impossible to cope with manageable, and help me keep my sanity on a daily basis.

6. Libby. My sweet puppy. We just had a nice talk which ended in me giving her a some belly rubs. :-)

7. The weather. Yesterday, before dinner, Uncle K, Hubby, Fuzzy and Pumpkin all played some basketball. I sat in the shade and watched. It was a lot of fun. Lots of laughs, trash talk and silliness. Pumpkin claims she was born with a disability that prevents her from doing a lay-up. I told her lack of skill is NOT a disability... hard work can cure it. LOL

8. Orientation. Yesterday, Fuzzy had his high school orientation. He went reluctantly but came out with a great attitude and a new found excitement for the new year that begins on Wednesday! Yay!

Can I ask everyone to pray that there will not be a health insurance glitch this week? Heaven knows most insurance companies would be glad to dodge covering me with the Rheumatoid Arthritis, lupus, and brain tumor. Ack. We do need some kind of insurance reform... don't have the answer as to what... but something... thank you.

I hope that this entry finds you all with a joy in your hearts and a song on your lips!

be well...

Thankful Thursday

It has been a week... that's about all I can say off the top of my head... but I know when I start this week's list, my blessings will come to light!

1. Mia. My friends Bob and Ilene adopted a kitten for their daughter, S. Last night when they brought R, their son, here to stay over they brought sweet little Mia to visit me. I held her and she slept in my arms for over an hour. Such a sweet little kitty. Best thing to happen to me since we returned from lake.

2. Tom. Your hospitality at the lake was wonderful and we had a wonderful time. The silence and beauty of the lake Saturday morning in the sun is something that will revisit in my mind often in times of stress or pain. Thank you.

3. Pumpkin Muffin. My sweet daughter. You have seen that this has been a tough week for your mom and you have tried to take care of me with extra hugs and 'I love you's' whenever you can.

4. Coffee. No way I would moving today without it.

5. Facebook. I have reconnected with some old school friends and have had my faith restored in the kindness of people in general. Thank you. You know who you are...

I should explain why that means so very much to me. Since becoming more actively chronically ill (after Pumpkin's birth), I have lost some friends here in town, and even a cousin, one town away. And, it hurt. I thought after being diagnosed with the brain thingy that maybe it would bring back one particular friend, because at first she seemed to be very concerned and wanting to reconnect. But, that was short lived. Once she found out I wasn't going drop dead any second from it, she ignored me again.

I have found more understanding and kindness from those who haven't seen me in over 20 years... Strange how life can be, isn't it?

6. My mom. The manicure and pedicure you treated me to last Friday before we headed to the lake still looks great! And, everytime I look at my cute pink toes, I smile! Thank you!

7. My dad. For stopping on his way home today to get me a large iced coffee from Dunkin Donuts because today isn't a good day for me. Thank you.

8. Icanhascheezburger.com. For never failing to make me laugh outloud at the new updates, and we all need laughter. Lots of it. :-)

9. Farkle. My new addiction. I even bought the application for my iphone so I can play in on the computer or on the phone! lol

10. Bagel Bites and mini-hotdogs. My kids favorite summer lunches that they make themselves in the toaster oven, and even make for mom sometimes! lol

Well, I am feeling better already. Maybe the stairway to heaven will be open now, or at least purgatory... lol

Off to go watch the kids plus R play Guitar Hero for me! They are going to do 'Crazy Train' as a band. Can't miss it!

be well...

Since You've (actually, I've) Been Gone

I'm Baaaaaaaaaaaacccccckkkk!

Did you miss me? I did miss you all! And, I lurked here and there just to make sure all was well, but probably not as often as I should have done.

It was a combination of things that made me take a break from blogging and I have to say there was not one thing to blame more than another.

Mostly, I was in a rut. And, our computer situation had been very kooky.

I will be back now, but I don't think I will blog as much as before and definitely not now with the kids home for summer.

A quick update is in order for sure!

The kids are all good. Fuzzy graduated from 8th grade and will begin high school in September. He was on honor roll for all 4 marking periods this year! He didn't make it into the charter high school that he wanted to attend and was quite disappointed. But, as they say, it was a character building experience. He has one merit badge to complete before beginning to work on his Eagle Scout project.

Which brings us to Hammer, who HAS completed his last merit badge and will shortly begin research to start his Eagle Scout project proposal. Hammer will be 17 in a month, however he is not ready to learn to drive and we are just okie dokie fine with that. In fact, I am very proud of him that he realized that he is just not ready. Next month, my dad, Hammer and I will be taking a train trip to Chicago to visit the Field Museum. This is something Hammer has wanted to do since kindergarten and I am very happy to be finally getting this done! lol

Pumpkin completed 6th Grade with flying colors! She was on the Distinguished Honor Roll for all 4 marking periods which was her goal at the beginning of the year! All of her final grades were 96 and above and we couldn't be more proud! Unfortunately, she is on a break from piano, but I am very hopeful that she will return to it soon.

Hubby has finally left his awful company and hooked up with a wonderful new firm, just this June. I am very relieved and this promises to help alleviate some of our financial woes as time passes. All good things.

Now, for me. I am still very happy and counting my blessings daily! Health wise has been a bit of a struggle. I began to become sensitive to the Enbrel and began to have an allergic reaction which came to a head in April. I saw my rheumatologist in May and she wants me to start taking Humira instead. All at the same time as the insurance was trying to get approval, Hubby's old company changed insurance and then he left them, putting us on cobra, and starting September 1, we will have a new insurance.

Long story short no Humira until then which has resulted in a few flares for me. So far I have had to do 2 tapers of prednisone, which sucks, but it had to be done.

Oh, and the brain thingy is still there, but still not growing. So far. Yay.

So there you have it. Some good, some bad. And, it could ALWAYS be worse!

Right now the kids are home and we are enjoying summer!!! No schedule, later bedtime, lots of reading. It has been really nice. The kids had Scout Camp last week and had a blast. Pumpkin even went along (registered through Campfire Girls) and stayed with them. She had a tough time with the bugs and came home midweek with me on visitation day. I couldn't blame her. All the rain we had in NJ has created quite the bug fest. Eww.

So, that is that! Tomorrow, I hope to pop on and catch up with some of your blogs.

Oh and I still love my coffee as always!!!

And, I love facebook. I am sorry if I have not friended you but I have a lot of family and kid connections on there and I am trying to keep it more private than here, just something I feel I need to do!

be well,
Dawn

Thankful Thursday

Ahh... Thankful Thursday... you do like to sneak up on me! Like now, very late on Thursday... actually Friday am! I am having trouble relaxing because I needed to drink an extra cup of coffee at about 4pm today, and now the caffeine has me up.

I drank it in order to have a little extra 'oomph' because tonight we had a high school 'open house' to attend with Fuzzy. It was good, but long. Whew.

Here are my thankfuls...

1. I am thankful for Hubby, and that the biggest complaint I have about him is that he is a big baby.

2. I am very thankful for coffee! Especially, GINGERBREAD! Yay! It is a seasonal k-cup that I can only get for my Keurig coffeemaker during November, December and January! My first cup of it yesterday was just heavenly! I made a big deal out of it and Hammer was laughing at my lunacy as I turned the first cup into a momentous occasion!

3. I am thankful that on Monday I will be heading to Atlantic City with mom! YAY!

4. I am thankful for my upgrade to the iphone so I can keep in touch with home easier while I am away! I will send them pictures and texts and emails.

5. I am thankful for my early birthday/Christmas clothes from my mom and dad since I needed some new winter things and I can wear them next week on my trip first! (ps... My birthday is coming up on 11/22, since a few of you asked)

6. I am thankful for my kids and my family and my wonderful busy life! And, although it has kept me away from the keyboard, I know you are here and will be here when I am able to get back and catch up properly!

7. I am thankful that I have good healthcare and access to medicines that are helping me to manage my chronic issues! Today, I would never have made it all day and through and 2 1/2 hour Open House without the aid of vicodin. I was really hurting, but after the vicodin I was able to focus on my son and all the info that I needed to absorb tonight.

I will be keeping you all in my thoughts and prayers! This may be my last post until somewhere around 11/24! I will try to pop in and leave a quickie if I can, but if now, know that I am okay!

Maybe I will even win some money in AC! Wish me luck!

be well...